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Old 11-19-2020, 9:55pm   #21
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Hemorrhoids
Yup. If you donít have a bowel disease, and the blood is bright red, thatís the ticket.

Iíve been bleeding for decades. In my case, itís the lining of my gut is being ulcerated from Crohns. I lose enough blood (I digest some too) I get anemia. I just finished five iron infusions. I get two colonoscopies a year. I wake up in a hospital about twice a year.

I remember the first time. I was doing a keynote speech for a huge conference. In the green room I filled the bowel with blood. I didnít know I had the disease. I was FREAKED. I had to buck up and to the speech. They were paying handsomely. (I think $10k IIRC). ****ing terrifying.

In Afghanistan I got food poisoning and puked so violently I broke a blood vessel in my neck. So I was like a blood sprinkler from both ends. Disturbing. Corpsman looked like he was going to faint.

It doesnt always happen but sometimes it goes for months. An amazing quantity. Large clots plop out. Disgusting.

One more thing. People think Crohns is ďthe pooping diseaseĒ as in the chocolate sprints. Some have diarrhea 15-20x a day (my poor 80 yo mom) because the disease is attacking the large bowel.

But the disease does way more. We get rheumatoid arthritis. We get mental problems, skin psoriasis, severe fatigue, sometimes confusion.

No everyone has a bag (very few). We take cancer drugs to tamp down our immune system to stop the attacks. It works pretty well.

Mine attacks my small bowel so food can be slow moving through because of narrowing and rings of scar tissue from ulcerating. More importantly the special cells that absorb nutrients are replaced with regular scar tissue.

I worked in the oil field and took a lot of nsaids. They destroyed my gut. Now I canít absorb nutrients. My immune system is attacking my small bowel, my joints and my optic nerves. Iíll be legally blind by 65 or so.

Much of your brain chemistry is in the gut. Serotonin is made in the gut. People whoís guts are ****ed up, have depression and anxiety. And huge fatigue. I canít sleep so when aimpost crazy stuff, thatís the ambien talking. Sometimes I go on prednisone then I get manic.

Donít get it confused with IBS (irritable bowel syndrome) IBD is (inflammatory Bowel Disease). The difference is the former is inconvenient. Itís not a disease. Itís caused by food in an otherwise healthy system.

The latter, inflammatory Bowel Disease is not food related, it is progressive (gets worse):and incurable. It kills you. Somehow your immune system decided to attack your own body. Iíve had six inches of small bowel cut out in emergency surgery. It will happen again. I was just in the ER Monday with severe abdominal pain. They gave me steroids, morphine and fluids and sent me home. Iíve been on a liquid diet all week. (No booze)

This disease is seriously life altering. We look normal so people donít get it. I see people with cancer and their friends rally around them, buying groceries, driving to doctors appoints, doing home repair.

We get none of that. I drive myself to chemo. Nobody every helps. I had a singer one say she would come hang out to keep me company. She didnít I donít expect anything but when Iím down, I long for help that never comes.

Itís a disease that flares brutally then can go into remission for long periods. Iíve been flaring for almost two years. Sometimes like most of this week I was incapacitated i still managed to work.

I get stuck by needles more than 250x a year. My infusions to control the disease are $25k every six weeks. It takes five hours at the cancer center.
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Old 11-19-2020, 9:59pm   #22
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So glad there are no pics.
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Old 11-19-2020, 10:53pm   #23
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Old 11-20-2020, 12:33am   #24
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Hi Toots
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Old 11-20-2020, 3:38am   #25
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Hi Toots
Leg humpers anonymous óóóóóó->
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Old 11-20-2020, 6:15am   #26
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Old 11-20-2020, 7:36am   #27
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I share stuff like that because very few people understand the disease. I hope it can help those who struggle by educating others. We face a tremendous amount of discrimination and ignorance.
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Old 11-20-2020, 9:40am   #28
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I was diagnosed with Crohn's 40 years ago and have never felt any kind of discrimination because of it.
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Old 11-20-2020, 10:51am   #29
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I was diagnosed with Crohn's 40 years ago and have never felt any kind of discrimination because of it.



Crohn's Lives Matter
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Old 11-20-2020, 10:53am   #30
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Crohn's Lives Matter

I like that. Can I make a banner and go loot a store while police watch?
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Old 11-20-2020, 11:47am   #31
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I was diagnosed with Crohn's 40 years ago and have never felt any kind of discrimination because of it.
We have plenty of other reasons to discriminate against you.
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Old 11-20-2020, 3:12pm   #32
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We have plenty of other reasons to discriminate against you.
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Old 11-20-2020, 3:42pm   #33
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I was diagnosed with Crohn's 40 years ago and have never felt any kind of discrimination because of it.
I wonder if your symptoms are milder or different. One example is I donít do early day or late night meetings. Iíve heard people behind my back inferring Iím lazy and like to sleep in.

Iíve had clients ask why my skin is grey (only occasionally Grey) and part ways because they were concerned that I might not be up for the challenge) I have not missed a deadline in 25 years and I work six days a week.)

Insurance companies discriminate against me all the time.

Maybe discrimination isnít the word. I donít believe in shamefully hiding it. There are 750k people suffering invisibly in America with Crohnís disease. Most people think itís a shitting disease. For some it is. For most itís not.

One thing I hear from patients is that they feel very misunderstood and alone in their struggle because people canít relate or donít give a shit.

Like when people ask ďare you feeling better?Ē I never know how to answer. ďBetter than what?Ē

For the rest of us, itís pain 24/7 and the occasional life threatening complication or crazy infection we canít fight. We struggle to eat food. I donít even enjoy food any more. Hospitalizations, doctors and more doctors, needles and more needles, cancelling social activities from fatigue.

Is a part time job managing the insurance, docs and meds. Thank god for my wife.

Some people have it milder. Mine is classified severe. Itís sometimes day to day for me.

Iíve adapted to the fatigue. I just rest when I need. I choose my own work hours. I smoke weed. (Ok, I smoked weed before).

Iím still upbeat most of the time and Iíve accepted it. I do bitch about it!
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Old 11-20-2020, 5:54pm   #34
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Iím still upbeat most of the time and Iíve accepted it. I do bitch about it!
Bitch away, bitch!

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Old 11-20-2020, 6:24pm   #35
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Crohn's Lives Matter
ALL Diseases Matter!


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Old 11-20-2020, 6:38pm   #36
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ALL Diseases Matter!


Racist asshole.
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