~~~~ Onward and Upward Bar and Grill ~~~~

[Rodnok1]

Back from Duke... Dr was an amazing younger fellow. Most impressed with him.
He actually cared... Whoa wait a minute I'm not used to that.
Wonderful facility, 99% stuff done in house in same building.
Blood work was 10 minute wait max even.

So... No chemo for sure as it's localized. Not gonna lie that was a concern.
Mostly likely in one lymph node and possibly tip of right hip. They didn't have all the scans overlaid and he wasn't qualified to do it so getting with radiation dr for that part as nothing on hip showed on mri nor rib on anything but bone scan. Wasn't sure but they probably not even nuke the hip and if do its super small so may get some. None of that was discussed in depth as doing the pill/shot treatments first anyway. Basically they want to overlay everything for comparison to see if it's actually there. Wait you're not gonna just guess? Get outta here...

I go back in 2 weeks and start treatment in earnest.... For life.
Basically it removes all testosterone and starves the cancer.
I'm on Bicalutamide pills for a month, get a shot of lupron every 3 months(most likely lifetime maybe every 6 months if insurance will pay) and then in a month go on another daily pill(no idea what is) probably no end date.
Barely made it home and he had test results posted(full workup) and added comments. Then sent me an email with more info and things to do to help long term. Did say slight heart attack increase possibility (1%). I may have scoffed at 1% even being mentioned but he covered all the bases.
Went thru all the side effects of hormone stuff... But I'll live longer right... Ok then move along as unless my arm falls off or i grow a huge 3rd nut I'm good doc. Hot flash and some muscle loss i can deal with. Already knew all that was coming anyway.

I may have been a tad stressed out as the tech said my bp wouldn't register on the machine... Whoops... It got down to below 200 finally. I may have self medicated before left home even. They called us back so quickly I didn't calm down from shock of being there and the 500 assholes per mile in Raleigh and Durham trying to kill us on freeways. Tech asked... Are you stressing out.. Lucky guess you do know where you work right. Just saying lady.
I had made notes before we went to give them so didn't forget anything.. She chuckled at the comments like yes it hurt(man issues no womenz would ever understand).
I did explain the cluster of local place as Dr asked about other Dr I saw.
I'm sure I'll be seeing a radiation specialist probably very soon.

We did discuss his papers and work on genetic markers and if I was interested. Well yea if it helps the next poor guy down the road(like my son since this is on both sides of family).
Said next visit they're probably set that up also allong with bone density scan as it can definitely be an issue with treatments I'll be getting.


My brain is fried and migraine setting in pretty good.

Later.

[KenHorse]

Originally Posted by Rodnok1

Back from Duke... Dr was an amazing younger fellow. Most impressed with him.
He actually cared... Whoa wait a minute I'm not used to that.
Wonderful facility, 99% stuff done in house in same building.
Blood work was 10 minute wait max even.

So... No chemo for sure as it's localized. Not gonna lie that was a concern.
Mostly likely in one lymph node and possibly tip of right hip. They didn't have all the scans overlaid and he wasn't qualified to do it so getting with radiation dr for that part as nothing on hip showed on mri nor rib on anything but bone scan. Wasn't sure but they probably not even nuke the hip and if do its super small so may get some. None of that was discussed in depth as doing the pill/shot treatments first anyway. Basically they want to overlay everything for comparison to see if it's actually there. Wait you're not gonna just guess? Get outta here...

I go back in 2 weeks and start treatment in earnest.... For life.
Basically it removes all testosterone and starves the cancer.
I'm on Bicalutamide pills for a month, get a shot of lupron every 3 months(most likely lifetime maybe every 6 months if insurance will pay) and then in a month go on another daily pill(no idea what is) probably no end date.
Barely made it home and he had test results posted(full workup) and added comments. Then sent me an email with more info and things to do to help long term. Did say slight heart attack increase possibility (1%). I may have scoffed at 1% even being mentioned but he covered all the bases.
Went thru all the side effects of hormone stuff... But I'll live longer right... Ok then move along as unless my arm falls off or i grow a huge 3rd nut I'm good doc. Hot flash and some muscle loss i can deal with. Already knew all that was coming anyway.

I may have been a tad stressed out as the tech said my bp wouldn't register on the machine... Whoops... It got down to below 200 finally. I may have self medicated before left home even. They called us back so quickly I didn't calm down from shock of being there and the 500 assholes per mile in Raleigh and Durham trying to kill us on freeways. Tech asked... Are you stressing out.. Lucky guess you do know where you work right. Just saying lady.
I had made notes before we went to give them so didn't forget anything.. She chuckled at the comments like yes it hurt(man issues no womenz would ever understand).
I did explain the cluster of local place as Dr asked about other Dr I saw.
I'm sure I'll be seeing a radiation specialist probably very soon.

We did discuss his papers and work on genetic markers and if I was interested. Well yea if it helps the next poor guy down the road(like my son since this is on both sides of family).
Said next visit they're probably set that up also allong with bone density scan as it can definitely be an issue with treatments I'll be getting.


My brain is fried and migraine setting in pretty good.

Later.

I'm late to the party but I assume prostate cancer? (survivor here)

[Rodnok1]

Originally Posted by KenHorse

I'm late to the party but I assume prostate cancer? (survivor here)

Yes found during turp. 4+3 biopsy, psa low 30s.
Local Dr's and hospital have been less than up to snuff so went to Duke.

I read about yours while back.

I talked a friend into getting checked.. His psa higher than mine and spread to pancreas.

One thing I can tell you is if it spread at all you no longer are curable they just manage it. That was a bit of a shock.

[C3C7NIC]

Originally Posted by Rodnok1

Back from Duke... Dr was an amazing younger fellow. Most impressed with him.
He actually cared... Whoa wait a minute I'm not used to that.
Wonderful facility, 99% stuff done in house in same building.
Blood work was 10 minute wait max even.

So... No chemo for sure as it's localized. Not gonna lie that was a concern.
Mostly likely in one lymph node and possibly tip of right hip. They didn't have all the scans overlaid and he wasn't qualified to do it so getting with radiation dr for that part as nothing on hip showed on mri nor rib on anything but bone scan. Wasn't sure but they probably not even nuke the hip and if do its super small so may get some. None of that was discussed in depth as doing the pill/shot treatments first anyway. Basically they want to overlay everything for comparison to see if it's actually there. Wait you're not gonna just guess? Get outta here...

I go back in 2 weeks and start treatment in earnest.... For life.
Basically it removes all testosterone and starves the cancer.
I'm on Bicalutamide pills for a month, get a shot of lupron every 3 months(most likely lifetime maybe every 6 months if insurance will pay) and then in a month go on another daily pill(no idea what is) probably no end date.
Barely made it home and he had test results posted(full workup) and added comments. Then sent me an email with more info and things to do to help long term. Did say slight heart attack increase possibility (1%). I may have scoffed at 1% even being mentioned but he covered all the bases.
Went thru all the side effects of hormone stuff... But I'll live longer right... Ok then move along as unless my arm falls off or i grow a huge 3rd nut I'm good doc. Hot flash and some muscle loss i can deal with. Already knew all that was coming anyway.

I may have been a tad stressed out as the tech said my bp wouldn't register on the machine... Whoops... It got down to below 200 finally. I may have self medicated before left home even. They called us back so quickly I didn't calm down from shock of being there and the 500 assholes per mile in Raleigh and Durham trying to kill us on freeways. Tech asked... Are you stressing out.. Lucky guess you do know where you work right. Just saying lady.
I had made notes before we went to give them so didn't forget anything.. She chuckled at the comments like yes it hurt(man issues no womenz would ever understand).
I did explain the cluster of local place as Dr asked about other Dr I saw.
I'm sure I'll be seeing a radiation specialist probably very soon.

We did discuss his papers and work on genetic markers and if I was interested. Well yea if it helps the next poor guy down the road(like my son since this is on both sides of family).
Said next visit they're probably set that up also allong with bone density scan as it can definitely be an issue with treatments I'll be getting.


My brain is fried and migraine setting in pretty good.

Later.

Originally Posted by Rodnok1

Yes found during turp. 4+3 biopsy, psa low 30s.
Local Dr's and hospital have been less than up to snuff so went to Duke.

I read about yours while back.

I talked a friend into getting checked.. His psa higher than mine and spread to pancreas.

One thing I can tell you is if it spread at all you no longer are curable they just manage it. That was a bit of a shock.

So glad you are getting better care and an actual game plan. Sorry you had to deal with the incompetence.

Know those meds can have some side effects but you’ve got this!

We are here for you man!


Fuq cancer! 👿

[Steve_R]

Originally Posted by KenHorse

I'm late to the party but I assume prostate cancer? (survivor here)

Same here. Found it early and got rid of it. Had a great Urologist.

[Steve_R]

@The_Dude you need this. It’s in front of my hotel in Moab. Truck is private and not for hire. Your Jeep would fit well on the trailer.
.

[Rodnok1]

Needs some improvements... Still room, wash bay...

[LisaJohn]

Sounds like you found a better doc and treatment plan. Hang in there. I would definitely consider participating in the research aspect. Continued best wishes. You got this!

[RMVette]

Originally Posted by LisaJohn

Sounds like you found a better doc and treatment plan. Hang in there. I would definitely consider participating in the research aspect. Continued best wishes. You got this!

Morning all.

[LisaJohn]

Good morning

[RMVette]

Originally Posted by LisaJohn

Good morning

Morning Lisa

[A/E]

Thirsty Thursday ~ Make mine a Double ~ Let Today's Vibe be nuthin moar than . . . .

Onward and Upward . . .

To Great Day Everybody Oh Snap ~ The Masters Golf Thang is Delayed

Got time to put a few Bucks on the Longshot Tiger ~

This Post is Sponsored by the Genesis GV80

[Old Ben]

Morning Robert.

Morning Lisa.

Morning A/E.

[Rodnok1]

Morning Lisa, Robert, Ben, A/E and the rest of youins

Storms later they say, good hopefully knocks pollen levels down.


Have a good day everyone

[RMVette]

Originally Posted by A/E

Thirsty Thursday ~ Make mine a Double ~ Let Today's Vibe be nuthin moar than . . . .

Onward and Upward . . .

To Great Day Everybody Oh Snap ~ The Masters Golf Thang is Delayed

Got time to put a few Bucks on the Longshot Tiger ~

This Post is Sponsored by the Genesis GV80

Morning A/E

Originally Posted by Old Ben

Morning Robert.

Morning Lisa.

Morning A/E.

Morning Ben

Originally Posted by Rodnok1

Morning Lisa, Robert, Ben, A/E and the rest of youins

Storms later they say, good hopefully knocks pollen levels down.


Have a good day everyone

Morning Jim and Bear

[C3C7NIC]

Haven’t seen allergies this bad in decades. Snot city and so many folks coming in with asthma and “sinus infection”. Patients sure get mad when I tell them an antibiotic won’t help. Then thank me 2 days later when the roids kick in.

Off to Napa to get 3 piece gasket set picked up for the new carb. Lars was very helpful in letting me know what all was needed.

Now to find a 69 choke coil (which is the one he stated I will need).

Originally Posted by Steve_R

@The_Dude you need this. It’s in front of my hotel in Moab. Truck is private and not for hire. Your Jeep would fit well on the trailer.
.

Baller toys.

[MikeB]

Morning all
Rain day.

[Rodnok1]

Morning Nicole, MikeB

Yea my allergies have stepped up their game the last 2 weeks Nicole...

[RMVette]

Originally Posted by C3C7NIC

Haven’t seen allergies this bad in decades. Snot city and so many folks coming in with asthma and “sinus infection”. Patients sure get mad when I tell them an antibiotic won’t help. Then thank me 2 days later when the roids kick in.

Off to Napa to get 3 piece gasket set picked up for the new carb. Lars was very helpful in letting me know what all was needed.

Now to find a 69 choke coil (which is the one he stated I will need).




Baller toys.

Morning Nic

Glad you connected with Lars, he's a guru on carbs!

Originally Posted by MikeB

Morning all
Rain day.

Morning MikeB

[LisaJohn]

I thought the pollen/allergy mess was bad around here. The saline rinse has really helped me. My poor little grand’s eyes were red and puffy yesterday. And he takes monthly allergy shots.