Excuse me while I whine

[SnikPlosskin]

Originally Posted by Uncle Pervey

I don't have Crohns (thank God!) but I do have rheumatoid arthritis. I've been on Remicade for 6 years now and it helps some. The only side effect that I've had was a very bad allergic reaction that almost killed me on my 8th infusion session. Now I have to take 3 benedryl an hour before the sessions. It does cause my BP to fall into the toilet during the infusions, one time the nurse made me get up and walk around because it dropped to 70 over 40. Hell, I was sleeping and felt good. I am fatigued by it, but
not too badly debilitated by it.
The following day is the worst for me but it passes pretty quickly. I am on a 8 week cycle now but I see the doctor in a couple of weeks and I am afraid he's going to put me back on a 6 week schedule.

Same here. Benedryl, every 8 weeks, rough day after. Ate like a pig today. Funny thing was it almost immediately killed my RA. No more joint pain!

Hoping it goes to work on my digestive system now. 6 years!? Wow.

Good to hear though. Sounds like it gets easier.

[Uncle Pervey]

Originally Posted by Thrakk

Same here. Benedryl, every 8 weeks, rough day after. Ate like a pig today. Funny thing was it almost immediately killed my RA. No more joint pain!

Hoping it goes to work on my digestive system now. 6 years!? Wow.

Good to hear though. Sounds like it gets easier.

I hope you have good results from it, a guy I work with has Crohn's is on Remicade and it is working great for him. I run into quite a few other Crohn's patients during my infusions and they are all very happy with their treatments.
You're right it kicks the joint pain almost immediately.
RA runs in my family, apparently inherited from my Great-grandfather, since I have it and several other of my cousins and a niece all have it.

[SnikPlosskin]

I always thought my back pain and joint pain was from multiple car accidents, martial arts and the music business. Turns out it's Crohn's. It's all inflammation caused by our out of control immune systems.

I've had severe joint pain 24/7 since 1997. Sometimes I couldn't walk. Soooooo glad to lose it. I almost forgot what it was like to not have pain. You sort of get used to it. In fact, I didnt really know how much pain I had until it was gone.

Great side effect!